It's been a week, seven days since you left the hospital last Tuesday to come to a place that so many people have told you about....Home. Home is a place that most people feel comfortable and know very well. For you it's a bit of a different story. The only home you have known for the first six and a half months of your life has been the hospital. To top that off mommy and daddy don't exactly have an established home to bring you to because the the insanity of moving from Texas, your early arrival and then our unexpected hospital adventure. Thankfully Grandma and grandpa have not only opened their home to us but rearranged the vast majority of their house and lives to make a wonderful place for us. Mommy isn't going to lie she was a little nervous to spring you from the hospital but excited to start the next chapter of our lives.
We have heard stories of babies that have been in the hospital for a long time and not done so well with the transition home. I imagine it has to be a lot of big changes for a little guy. As with most big things you have been faced with you took it on like it was nothing. You were calm and happy on your first car ride home. When we walked into Grandma and Grandpa's house (which was beautifully decorated by mommy's friend Julie) you were nothing but smiles. You behaved like a good little boy all afternoon playing with grandma and grandpa while mommy and daddy signed paperwork and got things organized. Then as things started to settle down mommy sat down next to you and realized something didn't look right. Your feeding tube was hanging down further than usual and so mommy lifted up your shirt to inspect things. Unfortunately your feeding tube was almost all the way out.
So within a matter of a few hours you were back in the car and heading toward Children's Hospital. There's one thing that's for certain, you don't travel light. Luckily your doctor called ahead and we didn't have to wait in the ER so we could head straight to radiology. The next hour or so wasn't the most fun for any of us. The doctors had a pretty hard time getting the tube back where they needed it and despite the fact that you hadn't had a nap all day you were amazingly good. Mommy and daddy are so thankful that we have such a tough little boy. Thankfully the tube was back in and we didn't have to spend the night in the hospital. Back home we headed. Let's not make these late night runs a habit. We need that tube so you can get your milkshakes and medicine.
The rest of the week has been filled with settling into your new room, your new house, and your new routine. You have adapted very well to your new surroundings. We have played not only in your super cool room but in the family room and even ventured into the kitchen while we all eat dinner. When you move from room to room it kind of looks like a parade traveling through the house. It's not the easiest thing but mommy and daddy won't let that stop us. I have a feeling that is how a lot of things in your life are going to be, not so easy but worth the work. As far as a schedule we haven't exactly gotten that down to a science yet but who really cares. The important thing is that you sleep pretty well at night and we have all day to get the rest of our work done.
You have had a few visitors already and made it home just in time to celebrate your girlfriend Auntie Beth's birthday. Although she seemed to like her present I think she was much more excited about cuddling with you on the couch. There is a new person that has started coming to visit you each night. Her name is Stacey and she is your nurse. You haven't seen all that much of her because you are usually asleep when she gets here and still sleeping when she leaves in the morning but mommy and daddy are extremely thankful that she is here. Because we know that she is taking good care of you at night we have been able to get a little rest the past few nights which is much needed. Please be nice to her buddy because we need her to stick around.
We do need to ask all of your fans to say an extra prayer or two for you in the coming days. It appears that you are either teething or working on your first cold. You have been a little fussy and super snotty with a few low grade temperatures over the past two days. We've been in touch with your doctor and keeping a close eye on everything but our main goal is to get you through this without returning to the hospital. I know a cold sounds like no big deal but as one of the ICU doctor's said a long time ago "Connor's first cold will be a big deal, a life event." We are hoping to prove him wrong and breeze through this. Right now it seems we're on the upswing so rest up little buddy so we can stay home and play some more.
Connor we love you so much and can't express how happy we are to have you home with us.
Love,
Mommy
P.S. Yesterday was your last dose of Ativan. Yes! Another medicine off the list.
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