First of all, you better check out the Gigi blog... we finally got the pictures on there :)
Its been a while again, somehow your mommy and daddy keep getting busier and busier (even though I swore that wouldn't be possible) and we have been obnoxiously neglectful of our duties in note writing. Sorry about that, I promise we are trying to do better. Its amazing how the days just fly by though, before we know it one day has ended and the other one is in full swing and then it just happens again. I know people say that time flies once you have kids but this is a bit extreme if you ask me. Just sayin...
So I wanted to fill you in on a trip you made a few weeks back. It was a Saturday and it was warm outside and a good friend of yours (some say she is more than a friend) was throwing a big party and wanted you to come. So like any other day your mommy and I (with the help of one of your nurses) packed you up and loaded all your accessories into the car and drove you out to help celebrate your heart buddy Ava. Her mommy and daddy and their friends and family worked really hard for a long time to put together a big event for her and what an event it was.
We got there a little while after it started and there was already so many people there that they had to direct traffic. You see your friend Ava's daddy is quite the car aficionado and he organized a car show and contest as a part of her benefit. They had over 80 cars there with their hood up and their paint shining in the sun. It was really a sight to see. I have never seen so many cool cars in one place at once. I think you liked the ones inside the best, maybe it was because there was an awesome Mustang there, maybe it was the air conditioning, no one will ever know I guess.
You got to see a lot of your friends that day. Your good Buddy Rick was there and couldn't wait to see you. And you recognized him as soon as you saw him too, even though he was equipped with a boot and a cart after a foot injury. He did is Daffy Duck voice and you were in heaven, smiling just like you always do when he talks to you. You saw a couple of the people who you hadn't met but who knew all about you because they have been following your notes and praying for you for months. It never ceases to amaze your mommy and daddy when we meet people who love you so much even though they have never met you. We are thankful for each and every one of them.
Then you made your way around to see the guest of honor and her mommy and daddy. You even got another special surprise when you saw Ava and you got to see your other heart buddy Brooklyn. We hadn't seen her or her parents in such a long time but they were all looking like they were doing great. Mommy said it was like a small heart reunion and she even got a great picture of you three together.
So we spent an hour there and helped them raise money for the charities they support, like Ronald McDonald House and Children's Hospital Cincinnati. Mommy even managed to snag herself a signed picture of Nick Lachey somehow.... But it was a great time and a great way to visit your friends and support a great cause. We were sure happy to be able to be a part of it.
Now as part of our new strategy for more notes I am going to stop here and write another one soon to tell you about some of the other great things you have done in the last month or two. In the mean time here are a couple pictures for your fans.
Now you keep up the good work Bubsky, we will write more soon. Your mommy and daddy sure are proud of you and LOVE YOU SO MUCH.
- Daddy
1 comment:
Hi, my name is Theresa and I live in Portland, Oregon. My niece was born with CHARGE syndrome. She just turned 33 this past July. She has lived more longer than the doctors ever thought she would and I think she has had a good life. My sister, Pat, and Erin, live on the Oregon Coast. Pat has been absolutely diligent with Erin's health by supplementing much of her treatment with alternative practices. Everything from food allergy testing - which was a biggy - environmental testing (had to give the cat to a friend) acupuncture, chiropractor - you name it - she has kept Erin healthy through the combination of both traditional and non-traditional treatments. I just wanted to pass this on because CHARGE is such a rare syndrome and I wanted you to know that my niece continues to be happy every day and has defied the odds of what was first projected. Wishing you and your family the best!
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