Changing of the guard.....

Hi Connor,

The last few days we have been in a bit of a holding pattern.  You haven't really had any "episodes" or setbacks but we've all been on the edge of our seats just in case.  It has been somewhat frustrating for mommy and daddy because with the holiday the doctors have been in a bit of a different rotation.  Normally mommy and daddy adjust to a new outlook and plan for you every Monday when the attending doctors switch.  Mommy calls this the changing of the guard but the past few days we have switched back and forth between different plans and opinions several times in one weekend.  Now please don't get the wrong idea,  mommy and daddy really like all of your doctors and trust them completely.  They are all working hard to do what's best for you but they each have a little different way of getting there.  I guess that's what happen when you combine so many smart people.

That being said, today Dr. Cooper is back in the driver's seat for the week.  He hasn't seen you in a little while and it was very encouraging for mommy to hear how much better he thinks you look.  At rounds he told mommy that he talked with all the doctors from the weekend as well as Dr. Morales and they were all on board with progressing you forward.  So instead of spending your day taking field trips for tests and procedures you got to relax in your room.  The doctors agreed there is no reason to test more about the cause of your "episodes" while you are on the upswing and not having them.  Mommy was thrilled to hear that because doing those tests would have meant putting that yucky tube back in your throat to do them.

So we switched gears from testing to progressing and away we went.  They started turning your oxygen down slowly and took away one of your sleepy medicines.  You were a little fussy today but you were also awake for a while and happy about it.  Mommy and daddy both got to hold you and share some snuggle time.  During mommy's snuggle time we played a little peek-a-boo.  The expression on your face was priceless but I'm not sure you exactly understood the point.  You seemed confused every time mommy's face disappeared and surprised every time it reappeared.  Don't worry we will get a lot more practice with this one.  I think all of our cuddling and playing made you pretty tired but you sure sleep well in mommy and daddy's arms.

Now you are sleeping and mommy and daddy are settling down for the night.  Rest up so we can cuddle and play more tomorrow as we continue our week of progress.  We love you very much little man.

-Mommy