TGIF

Hello there Connor,

Yesterday was such a busy day with all your visitors I was sure you'd sleep "like a baby" last night but apparently you're a night owl.  I'm guessing you inherited that from your grandma and uncle Scooter.  We were able to avoid your usual witching hour fits, as mommy calls them but when mommy got up to make your middle of the night milkshake you were wide awake playing with Gigi.  Luckily you were happy and played a little while longer but then went back to bed without a fuss.  Mommy and daddy were actually able to get a few hours of sleep but I'm not sure about Gigi.

Today has been pretty calm and you have been sleepy but that's understandable after your busy day of socializing yesterday.  We didn't get any big news from your doctors today except that they need to do a little more investigation as to why you seem to keep getting a fever.  All of their tests show no infection so maybe you're just hot stuff :)

You did hit a few milestones today.  Since you have tolerated your milkshakes so well and they keep increasing their size you don't have to get that TPN stuff in your IV anymore.  Just milk for you now little man, that's exciting.  And it seems that milk does a body good because you've gained some weight.  Today you weighed in a little over six pounds which is pretty awesome for all you've been through.  We have to keep packing on the pounds so you're as big and strong as possible before they work on your heart.  That's a good excuse for Mommy to eat some extra snacks like the Graters ice cream I had tonight.  The doctors also felt your labs have been stable enough that they don't need to do them every day just twice a week.  Thank goodness because they've been stealing a lot of blood from you buddy.

You did wake up for a while this afternoon and have some fun play time with Grandma and Gigi.  That's right your grandma was back again today and Gigi was right by your side too.  It seems the spoiling by your grandmas has already begun.  It also seems that your little temper is growing.  Anytime the slightest thing ticks you off you get mad and in a hurry.  I understand you're sick of the tubes and lines but a wet diaper is not the end of the world buster.  We may have to look into some anger management strategies because I can't imagine sending your heart rate through the roof is a good thing, nor is it helping with the gray hair mommy and daddy are getting.

As for tonight you've taken a series of cat naps but are hopefully settled in for a while now.  You are listening to your giraffe make safari noises which you seem to be very interested in today after Grandpa's play session  with it yesterday.  You will have to thank Aunt Kathy, Uncle Paul and their entire crew for your giraffe someday.  We named your giraffe Megan after your favorite nurse (which says a lot since you've had so many great ones).  I know you love Megan because she gave you your first bath, served your first milkshake and broke the rules so mommy and daddy could hold you the other day.  Mommy and daddy love Megan for a lot of reasons but most importantly because she was your nurse when you arrived here at Children's and had your little "episode."  Daddy says that she truly saved your life and we can never thank her enough for that.  She hasn't gotten to be your nurse much more since then because she's usually in charge of meeting the new babies and taking care of them when they first get here but she makes sure to stop in and see you every time she works.  She loves to play with your hair and she always gives mommy hugs.  She is another angel God has sent for us.

 Daddy and I are just relaxing and thanking God for another great day with our little miracle (that's you buddy).  Oh, and TGIF means "Thank Goodness It's Friday" and thank goodness we made it though another week. Sleep well sweet boy.

I love you Connor,
Mommy